"Yeah, I went to high school with a girl that has a baby with Down syndrome."
"I go to church with a girl that has a baby with Down syndrome."
"I knew a girl in college that now has a baby with Down syndrome."
"I worked with a girl that now has a baby with Down syndrome."
"The lady that does my makeup has a baby with Down syndrome."
I have many titles, sister, daughter, wife, mother, makeup artist; and now I just have the one it seems. The person you know with a child that has Down syndrome. When I first found out when Treg was just a growing little one in my belly that he was going to have Down syndrome I thought about what others might think. I thought, "are they going to think that something is wrong with ME, since I have a baby with Down syndrome?" I spent so much time in the beginning consuming my thoughts with what everyone would perceive me and Treg as. Did people feel sorry for me? Did people think it was something I did wrong in my pregnancy? Did people.... every thought about what someone else might think.
I never thought about having a child with Down syndrome. I even volunteered with children with severe special needs and the thought never even crossed my mind that I could possibly have a child with a special need. I was healthy, young, my husband is healthy, young. What could go wrong?
So when I found out, licked my wounds, and healed- I decided I would tell everyone. I wasn't ashamed anymore. (Yup, im pretty ashamed of myself I could ever feel ashamed of a beautiful innocent child of God, but I'm only human. And I felt ashamed that I didn't have what everyone in this world perceived as "the perfect child.")
Then I became known as your (place relationship here) with a baby that has Down syndrome.
When people first found out about Treg there was a lot of "he probably won't have It." Or "don't worry so and so tested positive for that, and didn't end up having it." And I understand that. People felt uncomfortable, they didn't know what to say, so they thought that telling me my baby probably wouldn't have Down syndrome, would give me comfort.
A cab driver asked jordan and I while taking us to the hospital to see Treg why he was there. After explaining he said "hopefully your baby will be healed."
When working as a makeup artist for LancĂ´me my sweet friend Tori and I were telling a woman and her mom about Treg. (Disclaimer this woman is sweet as pie) her and her mom then put their hands on my belly (Treg was still in utero) and blessed him saying that "God does not accept imperfection." In Jesus name.
Im not hurt by people saying crazy things, honestly I just laugh most the time. Because having a baby with Down syndrome scares people. It makes them uncomfortable. I wish that wasn't the case but I can't blame them one bit. I was that person a year ago. So that's why I am MORE than happy to be your (someone) with a baby that has Down syndrome. So you can see Treg. See how happy and fulfilling my life is because of him. See him for more than a baby with Down syndrome. See him as A BABY. A baby who loves to laugh, smile, eat, jabber, and take baths. Just normal baby things. Let you see the zillion pictures I post, in hopes that you get used to that look. So the wide almond eyes, with the inner crease, and teensy tinny nose might start looking a little more normal to you. So yeah, Treg can definitely be "that person" you know with Down syndrome:). But he is also so much more than that.
Love ❤️ love ❤️ love ❤️ the way you write. You're the (good mama) I know with a baby who has Down syndrome.
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